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Project CHM Instructions

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Special instructions for Project CHM

The major goal of Project CHM is to make genetic testing available to all individuals affected with Choroideremia in the United States. If we are to succeed in this ambitious undertaking, we believe strongly that it will be important for the doctors who currently care for these patients to be involved at every level of the effort. The Project CHM team is ready to support the patients' doctors in any way necessary to achieve the goals of the project, but, we believe that the patients' doctors must remain at the center of each patient's medical care. Thus, all individuals interested in participating in the project will be encouraged to do so through their existing physicians. When ordering the test, a patient may express interest in learning about Choroideremia research projects by checking a box on the order form. If this box is checked, members of the Project CHM team may contact the patient after the genetic test is complete and the report is sent to offer the patient the opportunity to participate in an appropriate research project. One of the fundamental goals of Project CHM is to make clinical genetic testing of Choroideremia a standard of care. We are moving in that direction but since we are not able to bill insurance companies directly, it is important for patients and physicians to work together to provide payment for genetic testing.

You can start requesting a genetic test.

Retrieved Sat, 2024-05-18 04:39
Last modified Tue, 06/10/2014 - 11:18